Supporting research sites in resource-limited settings: Challenges in implementing IT infrastructure
Identifieur interne : 000178 ( Main/Exploration ); précédent : 000177; suivant : 000179Supporting research sites in resource-limited settings: Challenges in implementing IT infrastructure
Auteurs : Christopher Whalen [États-Unis] ; Deborah Donnell [États-Unis] ; Michael Tartakovsky [États-Unis]Source :
- Journal of acquired immune deficiency syndromes (1999) [ 1525-4135 ] ; 2014.
English descriptors
- KwdEn :
- MESH :
- methods : Data Collection.
- organization & administration : Biomedical Research.
- prevention & control : HIV Infections.
- standards : Biomedical Research.
- Cell Phones, Health Resources, Humans, Internet, Medical Informatics.
Abstract
As Information and Communication Technology infrastructure becomes more reliable, new methods of Electronic Data Capture (EDC), datamarts/Data warehouses, and mobile computing provide platforms for rapid coordination of international research projects and multisite studies. However, despite the increasing availability of internet connectivity and communication systems in remote regions of the world, there are still significant obstacles. Sites with poor infrastructure face serious challenges participating in modern clinical and basic research, particularly that relying on EDC and internet communication technologies. This report discusses our experiences in supporting research in resource-limited settings (RLS). We describe examples of the practical and ethical/regulatory challenges raised by use of these newer technologies for data collection in multisite clinical studies.
Url:
DOI: 10.1097/QAI.0000000000000039
PubMed: 24321986
PubMed Central: 4195443
Affiliations:
Links toward previous steps (curation, corpus...)
- to stream Pmc, to step Corpus: 000427
- to stream Pmc, to step Curation: 000427
- to stream Pmc, to step Checkpoint: 000168
- to stream PubMed, to step Corpus: 000021
- to stream PubMed, to step Curation: 000021
- to stream PubMed, to step Checkpoint: 000021
- to stream Ncbi, to step Merge: 000483
- to stream Ncbi, to step Curation: 000483
- to stream Ncbi, to step Checkpoint: 000483
- to stream Main, to step Merge: 000178
- to stream Main, to step Curation: 000178
Le document en format XML
<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Supporting research sites in resource-limited settings: Challenges in implementing IT infrastructure</title><author><name sortKey="Whalen, Christopher" sort="Whalen, Christopher" uniqKey="Whalen C" first="Christopher" last="Whalen">Christopher Whalen</name><affiliation wicri:level="2"><nlm:aff id="A1">Office of CyberInfrastructure and Computational Biology, National Institute of Allergy and Infectious Diseases, NIH, Bethesda, MD</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Maryland</region></placeName><wicri:cityArea>Office of CyberInfrastructure and Computational Biology, National Institute of Allergy and Infectious Diseases, NIH, Bethesda</wicri:cityArea></affiliation></author><author><name sortKey="Donnell, Deborah" sort="Donnell, Deborah" uniqKey="Donnell D" first="Deborah" last="Donnell">Deborah Donnell</name><affiliation wicri:level="2"><nlm:aff id="A2">Fred Hutchinson Cancer Research Center, Seattle, WA</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Washington (État)</region></placeName><wicri:cityArea>Fred Hutchinson Cancer Research Center, Seattle</wicri:cityArea></affiliation></author><author><name sortKey="Tartakovsky, Michael" sort="Tartakovsky, Michael" uniqKey="Tartakovsky M" first="Michael" last="Tartakovsky">Michael Tartakovsky</name><affiliation wicri:level="2"><nlm:aff id="A1">Office of CyberInfrastructure and Computational Biology, National Institute of Allergy and Infectious Diseases, NIH, Bethesda, MD</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Maryland</region></placeName><wicri:cityArea>Office of CyberInfrastructure and Computational Biology, National Institute of Allergy and Infectious Diseases, NIH, Bethesda</wicri:cityArea></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">24321986</idno><idno type="pmc">4195443</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4195443</idno><idno type="RBID">PMC:4195443</idno><idno type="doi">10.1097/QAI.0000000000000039</idno><date when="2014">2014</date><idno type="wicri:Area/Pmc/Corpus">000427</idno><idno type="wicri:Area/Pmc/Curation">000427</idno><idno type="wicri:Area/Pmc/Checkpoint">000168</idno><idno type="wicri:source">PubMed</idno><idno type="wicri:Area/PubMed/Corpus">000021</idno><idno type="wicri:Area/PubMed/Curation">000021</idno><idno type="wicri:Area/PubMed/Checkpoint">000021</idno><idno type="wicri:Area/Ncbi/Merge">000483</idno><idno type="wicri:Area/Ncbi/Curation">000483</idno><idno type="wicri:Area/Ncbi/Checkpoint">000483</idno><idno type="wicri:doubleKey">1525-4135:2014:Whalen C:supporting:research:sites</idno><idno type="wicri:Area/Main/Merge">000178</idno><idno type="wicri:Area/Main/Curation">000178</idno><idno type="wicri:Area/Main/Exploration">000178</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Supporting research sites in resource-limited settings: Challenges in implementing IT infrastructure</title><author><name sortKey="Whalen, Christopher" sort="Whalen, Christopher" uniqKey="Whalen C" first="Christopher" last="Whalen">Christopher Whalen</name><affiliation wicri:level="2"><nlm:aff id="A1">Office of CyberInfrastructure and Computational Biology, National Institute of Allergy and Infectious Diseases, NIH, Bethesda, MD</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Maryland</region></placeName><wicri:cityArea>Office of CyberInfrastructure and Computational Biology, National Institute of Allergy and Infectious Diseases, NIH, Bethesda</wicri:cityArea></affiliation></author><author><name sortKey="Donnell, Deborah" sort="Donnell, Deborah" uniqKey="Donnell D" first="Deborah" last="Donnell">Deborah Donnell</name><affiliation wicri:level="2"><nlm:aff id="A2">Fred Hutchinson Cancer Research Center, Seattle, WA</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Washington (État)</region></placeName><wicri:cityArea>Fred Hutchinson Cancer Research Center, Seattle</wicri:cityArea></affiliation></author><author><name sortKey="Tartakovsky, Michael" sort="Tartakovsky, Michael" uniqKey="Tartakovsky M" first="Michael" last="Tartakovsky">Michael Tartakovsky</name><affiliation wicri:level="2"><nlm:aff id="A1">Office of CyberInfrastructure and Computational Biology, National Institute of Allergy and Infectious Diseases, NIH, Bethesda, MD</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Maryland</region></placeName><wicri:cityArea>Office of CyberInfrastructure and Computational Biology, National Institute of Allergy and Infectious Diseases, NIH, Bethesda</wicri:cityArea></affiliation></author></analytic><series><title level="j">Journal of acquired immune deficiency syndromes (1999)</title><idno type="ISSN">1525-4135</idno><idno type="eISSN">1944-7884</idno><imprint><date when="2014">2014</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Biomedical Research (organization & administration)</term><term>Biomedical Research (standards)</term><term>Cell Phones</term><term>Data Collection (methods)</term><term>HIV Infections (prevention & control)</term><term>Health Resources</term><term>Humans</term><term>Internet</term><term>Medical Informatics</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Data Collection</term></keywords><keywords scheme="MESH" qualifier="organization & administration" xml:lang="en"><term>Biomedical Research</term></keywords><keywords scheme="MESH" qualifier="prevention & control" xml:lang="en"><term>HIV Infections</term></keywords><keywords scheme="MESH" qualifier="standards" xml:lang="en"><term>Biomedical Research</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Cell Phones</term><term>Health Resources</term><term>Humans</term><term>Internet</term><term>Medical Informatics</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p id="P1">As Information and Communication Technology infrastructure becomes more reliable, new methods of Electronic Data Capture (EDC), datamarts/Data warehouses, and mobile computing provide platforms for rapid coordination of international research projects and multisite studies. However, despite the increasing availability of internet connectivity and communication systems in remote regions of the world, there are still significant obstacles. Sites with poor infrastructure face serious challenges participating in modern clinical and basic research, particularly that relying on EDC and internet communication technologies. This report discusses our experiences in supporting research in resource-limited settings (RLS). We describe examples of the practical and ethical/regulatory challenges raised by use of these newer technologies for data collection in multisite clinical studies.</p></div></front></TEI><affiliations><list><country><li>États-Unis</li></country><region><li>Maryland</li><li>Washington (État)</li></region></list><tree><country name="États-Unis"><region name="Maryland"><name sortKey="Whalen, Christopher" sort="Whalen, Christopher" uniqKey="Whalen C" first="Christopher" last="Whalen">Christopher Whalen</name></region><name sortKey="Donnell, Deborah" sort="Donnell, Deborah" uniqKey="Donnell D" first="Deborah" last="Donnell">Deborah Donnell</name><name sortKey="Tartakovsky, Michael" sort="Tartakovsky, Michael" uniqKey="Tartakovsky M" first="Michael" last="Tartakovsky">Michael Tartakovsky</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Ticri/CIDE/explor/CyberinfraV1/Data/Main/Exploration
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 000178 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 000178 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien
|wiki= Ticri/CIDE
|area= CyberinfraV1
|flux= Main
|étape= Exploration
|type= RBID
|clé= PMC:4195443
|texte= Supporting research sites in resource-limited settings: Challenges in implementing IT infrastructure
}}
Pour générer des pages wiki
HfdIndexSelect -h $EXPLOR_AREA/Data/Main/Exploration/RBID.i -Sk "pubmed:24321986" \
| HfdSelect -Kh $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd \
| NlmPubMed2Wicri -a CyberinfraV1
| This area was generated with Dilib version V0.6.25. |  |